so I heard the “c” word today

July 17, 2008

honestly, it didn’t surprise me.  there’s still a lot of tests to do to determine the extent, which a nurse from the rhuems office described with articulate crass.  I am not afraid as I write this.  I was worried for my husband and his reaction, but he is founded in the 4:8 principle at the moment, and we’ve agreed that God is in control and we’ll just keep moving forward.  (the robinsons)  I have a very rare autoimmune disease called dermatomyositis.  I’d like to explain that here but there are so many variations regarding a definition that I am going to merely tell you what I usually say.  (this is the mda version)  my body’s immune system attacks the blood vessels that supply my muscles  & organs, damaging them.  this makes me weak, and sometimes very painful.   I feel like I have the flu all the time.  Ricky Bell from the Tampa Bay Bucaneers died from it awhile back and there was a TV movie.  This however, is no movie. There is no swelling music, and I am not noble, nor a hero.   I refuse to be defined by my illness, so I rarely share it with anyone.  Unfortunately the illness is a lead in to cancer, so thus, I am not surprised.  It must not be serious as it took 3 days to call, and the nurse was very reassuring.  I know God is in control.  I know that he is using me in the lives of these kids.  If he chooses to use me in another way, ok.   Maybe God chose to use Matthias in a different way, and we just never will know what it was.  It’s time to gird up for the journey.   Time to be prayerful and ready for the fight.

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